Wow! It's hard to keep up with a blog! A quick re-cap:Evan was having great success with his diet.
We celebrated 160 days seizure free in August. At his last check-up we talked with his diet team about "cutting back" his meds. She thought it was a little soon, but said we could start with an EEG. The day of the test Evan was sleep deprived & got sick on the way to the hospital (car sick or eating eggs too early)???? He did great and didn't cry this time getting all the wires glued on.
In the evening we had a Back to School Picnic. While eating supper Evan asked me to feed him, I helped him get his food on his fork, but he could barely get it in his mouth! MY HEART SANK as I watched Evan struggle through his jerks & shakes (seizures) to finish his supper. Our count is over! This is not the answer we were hoping/praying for.The next week he had a few small seizures. When the Hospital called with his EEG results, they confirmed our fears.....Evan did not have a seizure during the test BUT there was a lot of brain activity (which can lead to or cause seizures). They would like to increase his meds.
Then this weekend we were camping and Evan began having LOT'S of seizures, clusters, drop-seizures. Leon & I feel so discouraged, to start over our counting, to watch our son go through this again! We are so thankful to be surrounded by friends & family who care, support & most important are praying. Thank you!
The last 2 days we have seen very few seizures, Evan just seems unsteady. We give all the credit to the power of prayer. Please continue to pray for Evan, and for us for wisdom with the next step in Evan's Journey.
